CF Clinic Appointments... There's nothing like it! ;)

Wham! Welcome to the world of CF. That's what the first appointment to the CF Clinic felt like. It was overwhelming and tiring. The first appointment took around 4 hours. But, I will say... this was the most people we have ever seen in ONE doctor visit. LOL

Aspen will have to go to the CF Clinic once a month until he is 6 months of age and then every 2 months until he is a year old and then every 3 months after that.

They take you into a room and people are in and out for hours. We see a nurse, nutritionist, social worker, research coordinators, two doctors and more. We were quickly told that if we didn't bring him every month, DEFACS would be called. Well now! Let's first assume that we WILL be there before saying something like that. LOL

The nurses are all nice but it's a long drawn out process. We are SO grateful to have heard such comments as "He looks awesome", "His chest sounds clear", "How is this possible" (referring to his weight gain) and smiles galore.

We're grateful to have these resources and to have doctors that are researching not only children with CF but babies with CF.

As of September, 2013... Aspen was in the 75th percentile for his weight and height. To think back to him not even being ON the chart... we are amazed! The doctors told us they would be happy if he could get to the 10-25th percentile. WOW! How God has answered prayers!

HOW AMAZING IS THAT?  A GOD THING! 

We are so thankful that the CF Clinic moved down the road to a much better location. :)